My Hearing Condition ,Please read this

Doctorb01@AOL.COM Doctorb01@AOL.COM
Fri, 13 Jul 2001 21:30:06 EDT


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In a message dated 7/7/2001 10:08:36 AM Eastern Daylight Time, Doctorb 01 
writes:


> 
> 
> Dear: PTG forum,
> 
>       I wrote a very short e-mail yesterday on hearing trouble. I wanted to 
> see if I got a response, or if I did correctly. I did get some responses 
> and I am glad, thank you for those who did!
> 
>       I want to begin by saying that this will be a rather long letter. My 
> situation is rather odd, and It would be very much appreciated if anyone 
> can shed some light on my condition, or is suffering from the same problem.
> 
>       To begin, my name is Simone Tucci, and I live in Toronto, Canada. I 
> am 26 years old and I have been tuning pianos professionally since 1998. I 
> am not a member of the PTG though I do get their monthly magazine. When I 
> began my career I had perfect hearing, and no genetic hearing disorders in 
> the family. I was tuning an average of 3 pianos a day sometime 5-6 and 
> sometimes 1, it varied. I also began to work at an institution where there 
> were many big grands in very small studios. I was coming home at night with 
> headaches, like I blasted my ears for too long every day. So I decided to 
> wear ear plugs. So I just bought ear plugs at the local store, 3M brand 
> (foam) were the ones that I was using. I thought that they were great I 
> could hear everything that I needed and I was protecting myself. I wore 
> them for a period of 2 years, every piano I tuned I wore them. Until last 
> October 2000, that is when the problem began.
> 
>       I first noticed that my ears began to ring (tinnitus) mostly in my 
> right ear. Then I noticed that when I would do something like drop a part 
> or a screw on my work bench my ear drums would have some sort of popping 
> reflex reaction. It felt almost as if they popped from out of their 
> footing, I hope that makes sense! I sort of ignored that symptom, I didn't 
> think that it was important. So I saw my doctor and he sent me to an ENT. I 
> had my hearing tested and it came out completely normal. The audiologist 
> recommended that I get a pair of ER-15 musicians plugs, and continue tuning.
> 
>       So I did. I did have to wait for an appointment to see the 
> audiologist to fit the moulds for the ER-15 plugs, so I went on doing what 
> I was doing. Then in October 2000 I noticed that is really began to get 
> worse. I noticed that kitchen noises bothered me, and in the bathroom, and 
> people talking to me really blew my mind. My ears couldn't take it. I then 
> tried to tune without the ear plugs and it was Impossible!! I thought that 
> my ear drums were going to explode. so I got scared. I went to my doctor 
> and he sent me to a Hyperacusis clinic. Once there, I saw an audiologist 
> and told him the whole story. He said that it was a classic case where I 
> became excessively sensitive through the use of improper ear plugs. He 
> tested my hearing and again it came out as normal as can be and then he 
> arranged for me to have a ER-15 ear plug fitting. (For those of you who 
> don't know of the Musicians Plugs there is a ton of stuff on-line.) He also 
> said that I should have a radio on in the background with it set in between 
> stations, to hear the static or white noise, this will help to desensitise 
> my ears (brain really) from sound, and it should take 2-3 months. I was 
> glad to hear that. 
> 
>       So the months pasted and no change. I kept going back for visits and 
> telling them that there was no change and they said give it more time. 
> After 6 months I went back and asked them to put me on the TRT ( tinnitus 
> retraining therapy) this also treats Hyperacusis. So they did a test on me 
> to see if I was Hyperacusic and I am not. So I told them what do I need to 
> do??? they arranged for me to have a ABR (acoustic Brainstem response test) 
> to see if there was a problem with the acoustic nerve. Had the test, and 
> came out completely normal. I asked them What do I do? They recommended 
> that I take Valium. I said that that is not the answer, that will only dope 
> me up and cover the disorder and not heal it in anyway.
> 
>       So I began to seek out other doctors, I saw a Marshall Chasin, a very 
> known audiologist that works with musicians, and he did a test to see I was 
> Hyperacusic and technically I am not. All the other audiologists agreed 
> with the similar tests. He didn't know what it could be. I also saw an 
> Otologist, and he did know ethier. He said try Valium.I saw in total 12 
> doctors between audiologists, ETS, Otologists, and I also tried acupuncture.
> 
>       I have now stopped tuning, because it's unbearable and trying to take 
> it easy. I am seeking a Homeopathic doctor to see if that can help. I have 
> also been researching hyperacusis online and I do think that is what I 
> have, there are different forms of it. I am going to demand to do the TRT 
> so that I can continue with my life. In addition I also had an MRI and that 
> showed everything to be normal.
> 
>       Just to clarify what is happening with my ears. They are (the ear 
> drums I think) very sensitive to sound. People talking specially women, and 
> my own voice, and sudden volume changes, and if at the piano, the higher 
> register. Not all the notes some here and there. I have distortion to 
> somewhat loud sounds, but the strangest thing is that if I hear one sound 
> at the time that is the biggest problem for me. If I go to some dance club 
> I'm fine, weird!!
> 
>       I want to thank all of you people for taking the time in reading this 
> situation that I am in, and if anybody can tell me something, or is in the 
> same situations or has questions please, please e-mail me. I got a computer 
> just to get help from anybody.
> 
>       Sincerely, Simone Tucci
> 
> 
> Simone Tucci
> Toronto, Ontario, Canada
>       
> 



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